Jump Dance Celebrate!
Monday 8-24-15 came with fun news! Slight shrinkage on my tumors and swelling!!! Yes!!!! Chemo seems to be working.
Backstory/Update/What this chicks been doing since I last posted on here:
Summertime please don’t leave! I love you so. hehehe. Took sometime to enjoy the great outdoors this last week during my free time. Drug my mother and little brother out on a mini hike. #2 for the little guy( go Damon ). We went up to Denny Creek Falls about 2miles round trip, perfect for the little guy and the mom that doesn’t get out much 🙂 Picnic, snacks, vegging, water splashing around in the creeks. Perfect place for kids ❤ Oh, Washington so much to offer in free entertainment you keep my heart happy.
On the way home we drive through Seattle. Little man hasn’t gotten to get out there lots. Heck, I hadn’t gotten to explore Seattle much myself til last year. So, I drag them around town a bit.
Both Mom(I have no idea what she’s been doing all these years to of not seen these, but no worries we’re fixing this) and Damon hadn’t been to Seattle’s famous Gum wall or Freemont’s Troll under the bridge. No Worries though.. Both can now officially be checked off their list. Slight bummer was that we got back to late to manage to wonder around the public market so little guy is still missing out on that. Although now we got another excuse to stop another time. 🙂 Bonus!!
It was a lovely day and I’m so glad I’m lucky enough to have such a close loving family that I don’t mind spending about 75% of my whole life with them now-a-days. Even though at times it makes me feel as though a teenager or something what woman doesn’t want to feel younger?!? Right?!!? Maybe?! Hehe 😛
That was my most adventurous exciting fun day since freedom happened. So maybe I just wanted to brag and share. Other then that I’ve been relaxing and seeing some random friends here and there. Nothing too remarkable to cram in here and have you get stuck reading.
Or well, thats a lie. Doctors appointments have happened, and yes lets chat about those..
Usual follow up visit. Cancer patients see doctors often. Thank goodness for great insurance. Anyways moving on.. Doc and I chat. Tell him how I still have headaches (nothing like my migraine from that week though) that I’ve been having some issues with seeing, things have been a bit blurry for me at times. Might be because of lack of sleep. Darn steriods keep a girl restless lately I’ve been a maybe 5 hour a night sleeper. Random nose bleed the other AM. Tired Drag Assey-ness. The usual.. Got the doctor curious. Whoops.. Off I go get another MRI to check out what’s going up there. Score! Being the super duper curious mouse I am I love being able to get updates on my issues.
Beep Beep durrrrrrr durrr chug chug.. Loud banging 30 minutes in a claustrophobic’s nightmare. Then waiting… Call comes through. Radiation specialist on the phone. Great news. Tumors have shrank a bit. That’s what I get told. Short and simple. Okay yay! Thank you. Off I go with more pep to my feisty little step.
Wednesday, 8-26-15, back to visit my friendly doctor. Short and sweet. He’s still waiting to hear back from Seattle Cancer Care Alliance so since chemo is doing it’s job were going to do another round while we wait. Monday it is.
Being the curious bugger I am though on my out I wonder on down to medical records. Hello.. May I please have copies of the reports on my pet scans lumbard puncture and MRI’s in the last month. 10 minutes later I leave with factual answers.
Compare and contrast……
7-27-2015 = 4.4 x 2.6 cm right frontal lobe and 3.6 x 3.0 cm left temporal lobe
7-30-2015 = 4.4 x 2.6 cm right frontal lobe and 3.8 x 2.8 cm left temporal lobe
8-24-2015 = 3.5 x 1.8 cm right frontal lobe and 2.9 x 2.2 cm left temporal lobe
So, maybe not a huge difference but almost a full cm of shrinkage on both of those suckers up there!
Having only done 2 rounds of treatment and being one month I’m pretty happy with it although I’m unsure how impressive it really is in the doctors eyes.
Reading reports written by doctors can be very informative and interesting. I found some mistakes in them which is different, but natural and human right so I mean just because you are of superior intelligence doesn’t mean you won’t make mistakes constantly, I suppose. Still had me thrown off at times.
Ever heard of Moon facies? Me either sounds kinda cute though right? Googled it..
Moon facies, or moon face, is a medical sign in which the face develops a rounded appearance due to fat deposits on the sides of the face. It is often associated with Cushing’s syndrome or steroid treatment (especially corticosteroids), which has led to it being known as Cushingoid facies (“Cushings-like face”).
Makes sense everyone’s been mentioning my adorable new rounded out chipmunk cheeks. Last chemo left me skinnier and thinned out. This time I’m running around on lumberjack man status. Constantly shoving food down my mouth never really full. Can’t decide which I prefer, yet.
Most positively crushing thing to see on the reports though is that my doctor seems at a loss on what to do with me. Appearently this must be pretty rare.
8-24-2015 = 4. I will discuss the patient’s case with Seattle Cancer Care Alliance as to direction for further therapy; should we stop the high-dose methotrexate and proceed with the whole brain radiation therapy, should we consider stem cell transplant?
I like that he’s open to get more opinions and help, but it’s not really comforting that I’m continuing to get treated when he seems at a loss. Although, obviously with my slight shrinkage it’s doing something so that’s better then nothing. Yet is it enough? How long do I do have till there’s more issues? No real predictability, LIFE ughhh..