Days 0 through Now


So they have their own wierd unusual ways to do things around here like my count up is what I’m doing now , but before it was chemo went in it as -9 thru -1. Cell day is like zeroing out for a new time. You saw I got a card and all from this medical bday I now possess.
Right now it’s Day +11 . Thinking about these past few weeks is harsh. I can’t believe what I’ve struggled and made it thru.

Days now consist of working hard to not go stir crazy. I think, my butt checks are flatter from laying/sitting on them ALL the time. Here’s some more some far to honest and others like yikes lame.

First I get okay skip this is things are gross to you, but some serious liquid bowel movements. I mean 10+ times a day is a bit excessive.I think, it’s worse then nausea, well maybe cause I barely experience that.  That’s more of a hold up since I’ve seemed to wobble back and forth in-between that and being stuffed up there because of all the pain killers I’m given, wouldn’t of made it without it them painkillers but man is it messing up my stomach. This is my nifty drug pump. I had my own button I could press every 6minutes that I was in pain. Strong stuff.

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Then its been that darn musous doesn’t want to leave got switched over to being a IV Fluid Bag eater, and liquifier. I didn’t drink except when i was required to take a pill. although because of it they did have me cross over into nothing but IVs basically. I also got to use my own like dentist suction tube for when I needed it. Helped lots with swallowing at times when the musous was intense.   Can’t wait till I taste and enjoy food again.

3rd weakness of mine? a rash or well two separate rashes that currently cover like my  whole body. Couldn’t figure out why and where from at first but last night after another dermatologist came to view me they think it’s from chemo and is just two different forms of it. So now I get to lather myself up 2x’s a day.

Being so close to done is hard. It’s just now working to adjust to being normal again and waiting for my blood levels to raise up. which they are doing at a remarkable speed, even the doctors are a bit shocked. Thinking I might get out tomorrow. YAYAYA! At first they were Not for sure on that tho. Had to prove I can get back to swallowing and taking my pills along with eating again since I really haven’t for awhile since they have me on a nice IV that fills my belly so I dont have to hurt my mouth.

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Transplant Day

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BOY OH BOY finally reached here!! Only been waiting about a month now. Phew so much has happened it’s wild. Can’t express how happy I am to of finally made it to the last leg of my treatment needs( hopefully ).

My day started off with vital checks that made my doctors nervous since all night and still this AM my heart-rate has been a bit high. So that got me to get an EKG. Easy peasy they put stickers on you connect some wires to them and hit a button on the machine to test it. About 10mins. Guessing good results since I didn’t hear anything else about it.
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Then with having a low enough amount on my hematocrit levels I got to get a bag of blood, and tons of fluids. Why do I sound happy about this well it sure has its magical way of perking a girl up. They say low levels cause people to fell fatigued and when we get the blood transfusion it helps boost our energy and it worked yet again. Slept most of yesterday and today I only took one drug induced nap. YAY.

unnamed (14)    Stemcells look like blood. Cell Bath      524de73a-2364-4b12-8118-98ce2aaa8993

12PM Stem Cell Transplant time. Hour long process. 4 bags. 4vital checks. Lemondrops and orange slices. Bags of cells have been frozen so they de-thaw them right before putting them up. Lemondrops and orange slices are to help with keeping your mouth damp and unscratchy. Wasn’t thinking I was going to need them but once I started to cough up a lung 😛 I gave in to their expertise. Also get vital checked before swap out of stem bags to double check the body is handling it. Once the last bag is empty its over unless you count the every 30min vital checks over the next 4 hours. No free time.  Doesn’t seem as scary as everyone makes it huh? I’m in agreeance. Although the tough part is to come as my blood levels continue to drop and take their time  to rebuild back up. Crossing my fingers I’m a champ and recover quickly, but time will just tell.

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UW Life.

WooHoo made it to inpatient day. Welcome to a new year and hopefully the last chemo round I experience. Yay!

So this stay requires a check-in with no real check-out date. BUMMER!! Showed up knowing it’ll be around a 2 week stay since I do 9 days of chemo then just got to wait til I’m healthy enough to be in public. My mind a few days like 5. They keep warning me it would probably be more around 2 weeks after my cells are given back to me. 😦 Time sure adds up . I suppose, we shall find out later.

9 days of chemo is broken up into 3 different types.

Thiotepa. Busulfan. Cyclophosphamide.

Thiotepa was given for 3 days. Usual side effects that most chemos come with, but this one requires 4 showers a day because of how it excretes out of your body and can cause rashes and irritation. Doesn’t seem like a big deal but its just more work specially having to wrap up your dressing areas. Just a timely thing and not as enjoyable as a regular shower.

Busulfan was another 3 days. Requires 5 days of pre-meds to help avoid getting seizures. Yup I’ll gladly do so don’t wanna join that club. Another bummer with this type.. It’s given every 6 hours. Doesn’t seem like much but boy did I not sleep these days. 6am chemo 7am nurse swap out 8am Daily meds and vital signs 12pm chemo 4pm vital signs 6pm chemo 7pm nurse swap 8pm vital check 9pm nightly meds 12am chemo and blood draws then 3am vital signs and repeat for those 3days. Not much free time in the night to get straight heavy sleep for yourself. Survived napping as much as possible but was glad to swap over to the next stuff.

Cyclophospiamide accompanied by Dexamethazone(not a fan favorite this is the stuff that made me swell and gain serious poundage.) steroid and mesna which is to help out the bladder and tons of extra fluids. Half the time I lived in the restroom they were giving me so many fluids.

Haven’t had any major issues. I do have mucositis which is just like a having sores all over mouth. Right now its not that bad sore and swollen but actual sores haven’t busted thru yet, yay. Experienced those with previous chemos wasn’t my favorite, and don’t mind waiting longer for it to happen or not at all.

After all the chemo I get a rest day. Just lots and lots of fluids. Waiting till the next morning to get the transplant. I made it! YES!!

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